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Raising a child with Downs Syndrome - Up we go!

This way up

Downs Syndrome Awareness Week

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This is the website I've been intending to write for 11 years! As this week is Downs Syndrome Awareness week so it struck me as a good a time as any to launch. Over time the site will be developed so that I can use my experience as a website producer and mother of a child who has Downs Syndrome, to raise awareness and help other people. I've even written a book (which is looking for a publisher!) so who knows, it may make it's first appearance here as an ebook.

To kick things off, here's a something for Downs Syndrome Awareness week. People with Downs Syndrome have 3 copies of Chromosome 21, rather than the usual 2, so I've written down 21 things I wish I'd known about Freddie when he was born:-

  1. I wish I’d known that after the difficult start when he was so ill, it would turn out so good
  2. That he’d have so many friends
  3. That it’s never stopped us doing things as a family
  4. That we didn’t get stuck on the Tweenies and he loves watching James Bond, the Simpsons and Dr Who (and High School Musical but I think I’ll leave that one!)
  5. That he’d play on his own perfectly happily
  6. That he’d be the only one of my children to remember to get a towel BEFORE he has a shower
  7. That he’d be able to make his own breakfast
  8. That he’d win a national photography competition
  9. That he’d go to a mainstream school
  10. That I have never been stuck at home caring for him
  11. That I’d continue to work
  12. That he’d love Cubs and Scouts
  13. That on a Friday night he’d go off down to club with his friends
  14. That I would see him dance on a stage in the theatre
  15. I wish I could have seen him playing with the dogs, bowling for George and making worm farms with Samuel.
  16. I wish known he’d be so fashion conscious and fussy about wearing the right clothes.
  17. I wish I’d known what a cracking sense of humour he would have, and how he would make us laugh.
  18. I wish I’d known he’d be able to operate the TV and DVD player before he could walk.
  19. I wish I could have seen the way he and Amber play together.
  20. I wish I’d known he’d enjoy life so much and be so happy.
  21. I wish I’d known I would be so proud of my son.

I hope you enjoy the site and find it useful.

Freddie and friends